Which is very good of them!
Thank you Helen.
Which is very good of them!
Thank you Helen.
After what I thought to be a false start back in February (previous blog posts refer), NICE have today issued “draft” guidance on the use of Rituximab for maintenance therapy in first remission cases of follicular NHL, such as mine.
I look forward to discussing same with my haematologist at my next session on Thursday. Maybe I will be able to have my treatment during normal hours now.
I was interviewed by the BBC about this yesterday morning, so I need to have a look and see whether I have made the cut or been spiked under an Icelandic Ash Cloud… 🙂
Well, it has been a couple of weeks, now…
Lots has happened, since 6th May.
Firstly, we appear to have a new dog. Well, she’s not quite with us yet, as she was born on Good Friday and will be ready to join us when we get back from New England. We have named her Betsy and she’s a Jack Russell. Here’s a photo of her trying to steal some grub from her mum.. “Ahh…”
It was the second anniversary of me discovering that I have a problem this week. Time marches on, but with the fantastic support and help of those around me, I am currently “well”, which is a great thing. My haematologist spoke of 5 years as a typical prognosis when I first saw him in 2009. I fully expect to get more than that, but I know that as the years tick by, this is going to press on my mind more and more. I mustn’t let it.
I have come through radiotherapy and chemotherapy pretty much unscathed and the maintenance regime that I am currently enjoying is not affecting my life at all, really, apart from having to go and receive the treatment.
I do get a lot more tired than I used to though. If I didn’t know I was ill, then I would pout this down to getting older, but I am not so sure that’s the reason. Having cancer, even in remission, must take it out of you.
It’s “always there”, in the back of your mind. It never goes away. This is quite difficult sometimes, as to all intents and purposes, I look perfectly healthy, and those around you either don’t know that you are ill at all, or have forgotten. While, that’s a good thing, sometimes it would be nice for those that do know (not immediate family, of course, but colleagues and acquaintances) to ask after your health once in a while. Some people do, but most people that do know have either forgotten, or just don’t feel it necessary or appropriate to talk about these things.
This is a purely selfish rationale, though. It’s nice to think that other people are thinking about you, but they have their own lives and worries etc. What I have promised myself, is that I will try to remember when people I know have similar problems, and I will ask after them. It’s a nice thing to do.
So, things could be a lot worse. I could have been born twenty years before, in which case I would be looking at a very different future. I could have been born somewhere else – ditto. I might not have had the benefit of a supportive family, friends and employer and I might not have been able to benefit from private medical insurance. I am a lucky man and, sometimes, it’s necessary to remind yourself of that fact.
Now, all I have to do is think of a third year title for this blog. Adding “Still” was fine for the second year, but something needs to be done moving forward into the third.
Answers on a postcard to the usual address, please.
My birthday present is on its way back from the factory, having been adjusted as it should have been in the first place. It will probably get here early next week.
Which is good news, I suppose. 🙂
And so has the camera.
After putting a roll of film through on the Saturday, I had thought that it was much more difficult to focus than either of my other two Ms. I put this down to the reduced magnification viewfinder. Unfortunately, this wasn’t the case. The viewfinder is actually mis-aligned in the vertical plane, and will never give a coincident image, until it has been adjusted. The camera is now back in Germany, being sorted out. I have been in contact with various people there, courtesy of great assistance from Jenny at Leica UK and Andreas from the Forum, and I am hoping that it will have been returned by next weekend. It definitely arrived in Germany before this weekend just gone, so fingers crossed.
Watch the wedding in Rebecca’s flat in Edinburgh with a lot of other “young people” – a good morning actually. I thought that the wedding was a great spectacle and I enjoyed watching it more than I thought I would. After that, we drove all her stuff back home, ready for her to head off round the world next week.
I also met Luke, her boyfriend, for the first time – a thoroughly decent and nice guy, if first impressions are anything to go by. I would expect nothing less!
Now, tomorrow, Bank Holiday Monday, we are off to see a new puppy, born on Good Friday. It’s from a litter that belong to a niece’s husband’s brother, and we have been receiving photos via text messages for several days now. It looks like “Betty” is the chosen name, after some deliberation, it has to be said. Audrey was right up there for a while… I suspect that she will be the one – it’s not possible to go and visit a week old puppy and not buy it. She will be ready to pick up when we get back from the US, so that’s all working out quite well.
She’s a Jack Russell… going to be an interesting summer.