Tag Archives: gratitude

This is the end…

No, not that end, but the end of this blog.

And that’s because there is nothing left for me to say on it. After 10 years, it’s job is done.

I am well.

I have actually been well since the end of my chemotherapy in 2010, but it’s only after several years than one can be sure. As time, and research moves on, it is becoming clearer that, for the lucky ones like me, there may be a “cure” for B-Cell Follicular Non-Hodgkin Lymphoma after all. Cure may be too strong a word, but “remission long enough to get you to the end of your life anyway” is how I am looking at it.

Basically, there is a proportion of the population with this who respond extremely well to the chemo and fantastic treatments currently available. Some 80% of patients survive 24 months without relapsing and needing further treatment, or unfortunately, dying. If you can get beyond that 24 month period, then it seems that you are more likely to never relapse. I will be 10 years from the start of my treatment in February and am confident that I am through this now.

Rituximab, as I have said before, has been a game-changer and the newer versions are even better. Great news is that Rituximab is now off-patent and available at a much more reasonable cost, so hopefully more people around the world can benefit. But, thanks to the people at Roche who needed the high price to bring it to market in the first place. Let’s hope that the research ongoing today brings forward better and better treatments.

I will still see my consultant going forwards, but only once per year instead of every six months, but can foresee a time when I will stop that too.

I wouldn’t wish this on anyone, but I am thankful for all the people who treated me and supported me when I was ill. And I hope that someone with NHL reading this has got something out of it – that was one of the reasons for starting it in the first place.

Now, it’s time to look forward to a great holiday in the US in the Autumn celebrating Ann’s birthday, our first ever Christmas away from home and a couple of trips booked for next year too.

But most importantly, our daughter’s wedding in a couple of month’s time. It’s going to be a great day.

I will leave this blog with a couple of photos taken a fortnight ago near the Severn Valley Railway, near Kidderminster. What a beautiful spot this is.

Severn-Valley-Railway

Poppies

Thank you.

 

 

PS – Since Flickr now have a policy of restricting the number of photographs on their site and Apple have stopped iWeb, I might set up a photography page on here. I will add a link if I do.

Support

I have been thinking about the huge amount of support that I have received from all sorts of people since I started this blog. Family, friends, colleagues and complete strangers. People I have known all my life and people I have known for a very short time. People I don’t even know at all. I have said this before, but I am so grateful for all of this support from everyone who has given it. It makes a huge difference, seriously.

But as I walked the dog for a couple of hours this morning, I was thinking about how most people need support and help. It’s very easy to think that everyone else just gets along fine and doesn’t worry about things. It’s very easy to be selfish and self-interested. It’s easy to take that support for granted. And it’s also very bad indeed. I’m not sure that keeping a blog such as this isn’t part of the problem – it’s almost asking, begging, for support from people. And if that’s not selfish, I don’t know what is.

So, from now on, I vow to be a better person to my family, my friends, my colleagues and complete strangers. I am going to be better at reading the signs when someone needs some help, or encouragement, or support, or love. And I’m going to do something about it.

Because if I don’t, it will be too late.